Sunday, October 14, 2018

Bean's Blog: A Year Later

It sure has been a long time since my last post. Over a year! I have wanted to write a new post many times, but fatigue gets in the way. (I am sure those of you with MS understand: fatigue is the most common symptom among those with MS) Working full time in a somewhat stressful environment takes it's toll on my MS for sure. But, here I am! What's a year, right?!

Even though I have had fatigue among other symptoms, I still am trying to raise MS awareness. Last October I modeled in Fashion Plates, a fashion show brunch hosted by the NMSS, which was so much fun! And, this past April, Team Kaliope participated in Walk MS for the 11th year. Thanks to friends and family I raised over $4600 for the NMSS!

I have been on Rituxan for about 2 years now, which is an infusion once every 6 months. So far it has been working well, according to last years MRI. It took some getting use to as after the first few infusions I had side effects and was not sure if I would continue on it. But, I think my body has gotten use to it, and hopefully there won't be anymore reactions to future treatments.


Other than MS and working, I have been enjoying time with friends and family, especially my niece, Melanie, who is now 4 1/2. I don't know where the time goes... but it sure is flying! Walk MS was extra special this year as Melanie joined Team Kaliope for the first time. She didn't quite seem to understand what was happening, and why we all were just walking down Commonwealth Avenue in Boston, but seemed to enjoy herself.  The weather again was too cold, but we made the most of it!

Ok, well, this is about all I write for now, as my arms are feeling weak.  I will try to continue posting, even if the posts are short!