Sunday, June 16, 2019

Exhausted! MS Fatigue: Here to Stay

I'm back! It's been 8 months (!) since my last post.
I haven't written anything for quite sometime because of my MS fatigue.  It seems stronger than ever.  I had a MRI at the end of last month and it came back showing I am stable. While I am incredibly thankful for that result, I feel almost disappointed or confused, because it doesn't match up with how I am feeling. I am still working full time and the days seem long and tiring. Luckily, in the last few months I have started going in to work a half hour later. It does help getting that extra half hour of sleep, but by the time 5:30pm rolls around - I am exhausted. Around 2 to 3pm is when I really start to feel the fatigue. Unfortunately, the anti-fatigue medications haven't helped.

My doctor gave me Trazodone to help me get to sleep. One pill seemed too strong so I started taking half a pill, and along with Lorazepam, it seemed to help. I also am taking Oxybutinin, which does help, but strangely if I take it every night it doesn't seem to work. So I take it about 2 to 3 times a week during the weekdays. 

What I find really helps is espresso!! I buy premade iced espresso and that helps me get through the morning. My MS specialist told me to try to not have caffiene after 2pm so maybe this is why I get tired around that time?

Who knows! Most days I am too tired to do much of anything, let alone blog. Since my last post, both my parents were in the hospital and I have been helping them a lot. (Who would have thought the gal with MS would become a caretaker?!) But I still have a passion for writing and raising MS awareness.... so I am still here!!

Bean's Blog slowly rocks on!

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